This page contains information about various Post-Polio forums.
Mailing Lists
There are a number of active mailing lists. You're urged
to read the more descriptive information at the various linked sites and
try out one or more of the lists to get a better idea of what each list is like.See: http://www.skally.net/ppsc/ppsc-l.htm
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The three lists below are complimentary and each has a different focus.
Support oriented
polio@listserv.icors.org
- The intent of the list is
to "Serve two purposes: To supply information, and to provide support and
friendship in an informal and friendly environment."
To subscribe go to
http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=polio&A=1
or send an e-mail to:
polio-subscribe-request@listserv.icors.org
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Information oriented
POST-POLIO-MED: is an open forum for questions and answers to and
from post-polio syndrome researchers, physicians and other post-polio
syndrome medical professionals, polio Survivors, family, friends, students and
others who are interested in post-polio syndrome. This includes, but is not
limited to: questions, answers and information about post-polio
syndrome research, clinical issues, clinical trials and current treatment
practices; support group, newsletter and other PPS related
announcements. To subscribe go to
http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=post-polio-med&A=1
or send an e-mail to:
Post-Polio-Med-subscribe-request@listserv.icors.org
For more info on
Post-Polio-Med, go to the Post-Polio-Med web page:
http://www.skally.net/ppmed/
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"A laid-back low-key,
no-beefs list" - post-polio@yahoogroups.com
Tom McKeever has
moved his long standing Post-Polio FIDONET Echo
to the Internet, although the
FIDONET echo itself still remains
active.
"As a service
to the FIDONET folks who have Internet access, we had
established a Moderated
List-Server at pps@pmihwy.com
. Effective 8
May, 1999, this list has moved
to a NEW home - One with many more
features and flexibility at: post-polio@egroups.com
. This List is
ALSO a "controlled"
list, in that rules are established, and WILL be
enforced.
The List is meant to be
an adjunct only to established list(s) and
not to supercede or replace any
others. The List is low-key,
PPS-Centric, meant to be kept
LIGHT and POSITIVE, and will be KEPT that
way!! <G> -
Consider it a laid-back, light alternative.
:-) Humor, poetry,
POSITIVE stories welcomed.. Negativities discouraged!! - No
slamming of other lists, folks,
companies, service providers, physicians
or the like will be tolerated!!
The only other request is that the
subjects dealt must have direct
relevance to PPS and how it
has/does/will affect our
lives!!'
'You can ALSO
subscribe by sending a no-subject message to:
"post-polio-subscribe@yahoogroups.com"
or by going to the Web Site at
"http://www.yahoogroups.com/list/post-polio"
and registering on-line!!
Thanks! Tom
Newsletters
Many support groups have newsletters here's a sampling of some of them.
Post-Polio Health International
Post-Polio Resource Group of SE WI
Nebraska Polio Survivors Association - Gleanings
Florida East Coast Post-Polio Support Group
Central Virginia Post-Polio-Support Group
Boca Area Post-Polio Group
Rancho Los Amigos Post-Polio Support Group
North Central Florida Post-Polio Support Group
Post-Polio Network RSA
the Southern California PPS Manager
Post-Polio Support Group Ireland
Facebook
Post-Polio Health International's Facebook page is
available here.
You can locate other pages by using the search box.